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ARM - Advancement of
research for Myopathies
ARM (Advancement
of research for Myopathies) is a non-profit organization with
the primary goal of speeding up bio-medical research on IBM2,
the Autosomal Recessive form of Hereditary Inclusion Body
Myopathies (HIBM).
Founded by HIBM
patients in 2000, ARM's mission is to support and inform
patients and their families, to raise funds for research, to
encourage researchers to study this rare disorder and to
ultimately find a cure for Hereditary Inclusion Body Myopathy (HIBM).
ARM, a non-profit organization, is the leading source of
information, hope and knowledge for HIBM patients worldwide, and
is the only non-profit organization specialized in this rare
disorder. ARM offers scientific grants to research centers who
are interested in working towards developing a treatment for
HIBM.
Every year
unsuspecting young adults are diagnosed with Hereditary
Inclusion Body Myopathy (HIBM), a rare muscle wasting disorder
for which there is no treatment or cure yet available. For them
and all HIBM patients, ARM offers a ray of hope with research
funding, support and an expanding campaign of public awareness.
Only with your help can ARM continue its efforts to cure this
debilitating disease.
Read the story
about two brothers, Dr. Daniel and Dr. Babak Darvish, whom in
their 20's (1997) started experiencing HIBM symptoms during
medical school. Living with such a powerful disease inspired
them to come forward and dedicate their lives to research and
finding a cure and thus formed ARM, a non-profit organization.
ARM's purpose and
goal is to accelerate biomedical research aimed at developing
treatments for HIBM (recessive HIBM - Hereditary Inclusion Body
Myopathy, Mendelian Inheritance in Man Catalogue # 600737), and
skeletal muscle regeneration. ARM's mission is to accomplish
this goal in the most efficient manner possible, with special
emphasis on considerations of results/duration/cost value of
proposed research.
ARM's vision is to
have an effective preventive treatment for HIBM available for
all current and future patients in the next few years, to offer
regenerative treatments for patients who have lost muscle
tissue, and to empower patients, and community, worldwide with
knowledge and support.
For more
information about HIBM please visit
hibm.org
<Interview with ARM’s board of directors and researchers>
<مصاحبه
با اعضای هیئت مدیره و محققین سازمان آرم>
<مصاحبه
با منصور پور اتحاد از بنيانگذاران آرم>
<سازمان آرم و روز
جهانی بیماری های نادر>
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